My friend and I just talked about this case on our jog.
We've both had children born (now deceased) where if NATURE had been allowed to take its course these newborns would have each died at birth. Unfortunately, for everyone involved, the hospital (nurses) wouldn't honor our DNR wishes. The doctors were honest and gave us each facts and no false promises. Each child was doomed never to eat on their own, suffer cerebral palsy, not walk etc. In my situation Hope Hospice loving got involved and let NATURE take its course and my baby passed away at 6 weeks.
My friend unfortunately had 7 years of emotional distress and a baby that never came home. Her hospital was a Cathilic hospital and they flat out told her they would not honor her DNR wishes. Mind you, each of our babies hearts had stopped but the nurses refused to honor What we signed. I did not look into the legal issues at that time. the doctors somehow got Hope Hospice involved for us. There is no logic used by some hospitals and those in a position of authority in some of these situations. Quality of life does matter and it's painful and upsetting to see the rights to that taken away.
Adamah, your points are incredibly interesting, if a bit lengthy and I hope you don't feel I derailed your thread in any way :)